Sunday, May 30, 2010

New clinic

So we met with our (possibly) new clinic on Thursday.  The doctor is an old man, and I've been spoiled with younger women, so that sucks.  They're ALL old men actually.  But that's the only thing negative that I came up with b/c this clinic is SO much more detail oriented that our current clinic.
First of all, he said that there is absolutely no way that I have early ovarian failure b/c my estradiol levels in my last IVF were 17000.  He couldn't explain the shittiness of the frist 2 IVF cycles though.  His only thoughts were that women have a few bad cycles a year, so sometimes they happen during an IVF cycle.  So I guess with that thought, we just have very bad luck?  Whatever, his point was that you can't EVER get an estradiol that high if your ovaries are failing.  He wasn't concerned about egg quality either saying that the stats just show that sometimes you don't get good embryos.  He feels another few IVFs are reasonable but will know more after I do a cycle with them.
We went to IVF orientation at this clinic yesterday, to help us decide for sure if we should switch.  It is amazing how many different things this clinic does.  They are all small, but when you put 20 different small things together, it seems like it could increase your percentage of success.  Their lab is more detailed as well, and I can't help but feel that DETAIL in a LAB is a pretty big deal.
So we're going to switch.
The doctor plans a protocol close to my last one but is switching puregon to gonal F (b/c they constantly compare their success/failures and apparently are having better stats with gonal F right now).  Otherwise, I'm doing the BCP with lupron, which I've never done.  So it's a pretty big difference really, which I hope is ok.
And diet changes:  I've already made many changes with increasing veggies, fruit and protein, but this doctor is big on significantly decreasing carbs especially during the 2WW.   Everyone has to take 5mg of Folic acid (I've just been taking my pre-natal vit.), 2000 units of vitamin D, and baby aspirin.  So more supplements to add to my plate of daily supplements.
My current plan is to start the BCP at the end of June, if it all pans out that way.  So IVF #4 at the end of July.

Sunday, May 23, 2010

Finally, this week we can move forward

We have an appointment for the new private clinic consult on Thursday.  They have called me 2 times to ask for specific details and some reports that we're in our medical records.  It's been interesting trying to find a copy of those reports and I'm hoping they'll be sent to this clinic on time for our consult.  Either way, this doctor is reading through our chart a week ahead of time and trying to get all of our background.  And more importantly, they booked us in within 1 week of receiving the medical records.
Plus, a LIVE person actually answers the phone when we call.
All good signs.

Wednesday, May 19, 2010

Medical Records

I was faxed our complete medical records yesterday, even though the "authorization for release" was directly to the private clinic we are planning to go to.  They obviously got my work fax number off my cover letter.  Odd error, but it works fine for us.
It was interesting to read through the whole chart.  I am a physiotherapist and have to chart every client, every visit, every phone call and email and cancelled appointment.  So I find it disturbing to see how little chart notes there are considering I've had 3 IVF cycles, 1 IUI, 1 failed IUI and a few consultations.  And the worst part is that there isn't one single note in there since the transfer that I had in March.  There is a lab print out saying that my beta was negative.  But that is it.
Now I have many clients myself, that may have the same type of injuries and treatment plans.  When they don't come back for 3 months, I go to my chart notes and scan my last notes, always grateful to "past me" for leaving a plan for the next visit.  If I haven't left a good plan (which seriously doesn't happen very often), I have to wing it and I admit that I spend at least 1/2 of the visit trying to remember what I want to do with them.
So putting this in context with my fertility doctor, she is going to scan my chart on June 9th, more than 3 months since our 3rd failed IVF cycle, and "wing it"?  I think this works fine if you're just spitting out a recipe of treatment, but I really don't want to believe that that is what they're doing.  I mean, everything about my 3rd cycle was different, even though I was on the same medication.  Will she have an answer for that?  Or will she have any suggestions for how we can make changes when I'm obviously not following her recipe?  I guess I need to switch clinics.  I'm sounding so negative about this clinic now.
The private clinic that we're going to for our second opinion will probably have read through the notes better than my actual doctor anyway.

Monday, May 17, 2010

Still, nothing to report

After 6 weeks of trying to get our records from our fertility clinic, we have been successful.  I was informed on Friday that our request has been processed and we'd get our chart notes early this week.  Not today though, of course!
So we are waiting for our follow up appointment on June 9th from our March IVF.  God, that is so absurd. It angers me that I've been waiting so long for feedback on that failed cycle.  We're also going to have our consult at the completely private clinic now that they're going to have our chart notes.  I'm hoping to get that appointment the first week in June since they said it would only take up to 2 weeks for an appointment.
Every time my husband has called the private clinic an actual person has answered the phone! This is unheard of at our current clinic.  Needless to say, we're probably going to switch to the private clinic, if not just to be able to get immediate answers and feedback.  I really do like my current doctor though, so I'd like to hear what she has to say about all of this.
Otherwise, I'm much more hopeful again.  I'm still very jealous of pregnant people and very tired of being asked nearly daily by clients "do you have any children?".  But I'm managing to NOT think about it at least part of my days now.  I've been doing great with my fertility diet, acupuncture 3 times a week and my low ovarian reserve supplements.  So hopefully July will be our next and last IVF.

Sunday, May 2, 2010

Just to post

I don't have much to share really.  I'm still surprisingly down but really only the people closest to me know that.  I can at least talk about the failed cycle with the few people who know now.  We went to visit some friends this weekend and it was still rather hard to socialize but it was good for both of us.
So I'm significantly healthier than a month ago but much worse than I normally have been this long after a BFN.
I assume we'll do a 4th IVF but that's still in limbo.  Maybe donor eggs make more sense.  I'm taking a few supplements suggested by Denver for poor egg quality.  And I've learned acupuncture from my coworker so believe it or not, I'm going to needle myself now at least 3 times a week for a few months.  So that's how I'm trying to move things forward in my head.  Trying to pick up some hope again.